I was finally diagnosed with lyme disease by a LLMD in March 2009. It took 6 years to figure out! A very slow decline of leg function and serious pain in joints and muscles. Traditional ABX treatment for next 12 months did not help much. Along the way LLMD also diagnosed babesia – antibiotic treatment was successful – RNA test confirmed babesia was gone. Only IGG antibodies in subsequent testing.
May-June 2010 – with new LLD (DO) – had 10 weeks of IM Bicillin weekly injection. Side effects were very difficult! Spinal tap (ordered by neurologist) in May 2011 shows no active lyme, also no bacterial, fungal or viral infection. But my neuropathy (paresthesia) continues. My body core is weak. Legs very unstable – unable to walk without walker or cane. Nerve sensations in legs and hips are seriously altered – combination of hyper sensitive and dullness. Trouble with diarrhea while on ABX, now the opposite – constipation in gut. My lyme doctor is puzzled why the neuro symptoms continue.
Had complete neurological analysis in past 6 months – Jefferson Hospital neurologist. No other diseases – MS, Lupus, Parkinsons, leprosy, ALS, etc. – running alongside. Infectious Disease specialist has also ruled out any other diseases from my extensive international travel. Neuro-opthamology also cleared me of any unusual illness. My blood work appears normal! What can I do to get my legs and walking back?